What a great day!

Yesterday was a great day. We went up to Primary Children's to see Tyson's neurosurgeon and neurologist to "talk". It went great. Because he continues to have seizures, we are upping his medication 0.5 mL for 5 days and then up another 0.5 mL after that. So, we will be at 3 mL with both his medications. The plan is to keep in touch with Dr. Van Orman the next 2-3 months and let him know how the medication is going. If we need to, we will max out both doses to 4 mL. If that is still not working we will probably add another medication (Phenobarbital as it seemed to work last time he was on it). I'm praying we don't have to go that far. Worst case scenario is another surgery...and we are praying to not go that direction either, but at least there is a plan now.

Anyway, I found out that Keyan and his family, a little boy who lives in Richfield was coming up to Primary's and had an appointment right after us. He has the same condition as Tyson, and is only 2 months younger than him. We met them last month when we went to visit them in the hospital when Keyan had his 3rd surgery, to remove the whole right side. He is doing great now. The best part is...no seizures since surgery. Amazing. Cutest little family and it was so great to see them.

Amanda, Keyan, me and Tyson

After our visit in Salt Lake, we ended up going to Orem because Brendalyn and her little girl Addy were in town from Maryland. I met her and her family on the plane last June on our way to Baltimore for the Hemispherectomy reunion. Brendalyn and her husband are both from Orem, and her and her mom came out for a couple of days. It was so good to see them. Addy has almost the same condition as Tyson, except it's the opposite. Instead of her right brain being large and abnormal, it is actually smaller and abnormal. She is now walking, which is amazing. She has not had the surgery yet, but is looking to plan a date for this summer to have it done out in D.C. We had so much fun.

Addy, Brendalyn, me and Tyson...and cute little Olivia.

I believe everything happens for a reason. I love being in all these kids lives and getting to know their parents...it really is amazing how our paths cross. It is so hard to go through trials like this, but when you have someone going through the same situation and you can lean on them for support, it's so comforting. I feel SO blessed.